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The Life Raft Group

Organización sin fines de lucro

Última modificación: 25/09/2013 14:52:09

Descripción

The mission of the Life Raft Group is to ensure the survival of GIST patients through a comprehensive approach connecting individual patients' needs, the worldwide community of GIST advocates and the global health and research environment.

To do this, we focus on three key areas: research, patient support & education, and advocacy.

In the area of research, we fund and manage uniquely coordinated research initiatives that always keep the needs of the GIST patient foremost. The Life Raft Group is the only GIST advocacy organization with a dedicated research initiative led by a team of world renowned scientists and clinicians in GIST. Our collaborative initiatives are constantly analyzed to ensure their focus remains on finding a cure for GIST.

The LRG also provides support & education to patients & caregivers living with GIST on an individual basis by providing one-on-one counseling sessions, local in-person meetings, and a biennial meeting that gathers the patient, pharmaceutical & medical professional communities together in a supportive and educational setting. We also offer education to the GIST community at large through our videos & webinars, websites, worldwide GIST specialist database, a one-of-a-kind GIST-specific clinical trials database, newsletters & other materials.

In addition, The LRG is a very active presence in effecting change in the GIST community. Our advocacy role ranges from helping patients with treatment access issues on a one-on-one basis, creating regional groups in underserved areas in order to better inform & empower patients, championing patients' needs before government & policy makers and reporting on trends in dosage and survival to the world.

Avisos de The Life Raft Group

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  • Website & Design Coordinator - Oportunidad de empleo

    Última actualización:
    08/08/2014
    Ubicación:
    Wayne, NJ, US
    Descripción:
    Description We are a dynamic support organization that directs research to find a cure for a rare cancer and helps those affected through support and advocacy u...
  • GIST Ambassador - Oportunidad de voluntariado

    Última actualización:
    28/02/2014
    Ubicación:
    Wayne, NJ, US
    Descripción:
    Title: GIST Ambassador Worksite: Remotely Hours: 2 hours per week suggested Volunteers Needed: 10 Description: A GIST Ambassador is someone who helps to inf...
  • Patient Registry Volunteer - Oportunidad de voluntariado

    Última actualización:
    28/02/2014
    Ubicación:
    Wayne, NJ, US
    Descripción:
    Title: Patient Registry Volunteer Worksite: Remotely if volunteer has computer ability to do this at home Hours: 5 – 10 hours per week Length of Commitment...

Historial de The Life Raft Group

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Organizaciones de The Life Raft Group

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Gente de The Life Raft Group

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    Aliya Wadood image

    Aliya Wadood

    Ubicación:
    Newark, NJ, US
    Detalles:
    Seguidor
    Manya Gorman-Knutson image

    Manya Gorman-Knutson

    Ubicación:
    Seattle, WA, US
    Detalles:
    Seguidor
    Lynn B image

    Lynn B

    Ubicación:
    West Caldwell, NJ, US
    Detalles:
    Seguidor
    Diana Nieves image

    Diana Nieves

    Ubicación:
    Wayne, NJ, US
    Tricia McAleer image

    Tricia McAleer

    Ubicación:
    Montclair, NJ, US
    Detalles:
    Seguidor
    Recruiter image

    Recruiter

    Ubicación:
    Wayne, NJ, US
    Detalles:
    Seguidor
    Pam image

    Pam

    Ubicación:
    Wayne, NJ, US
    Detalles:
    Seguidor
    Sara Rothschild image

    Sara Rothschild

    Ubicación:
    Wayne, NJ, US
    Detalles:
    Seguidor

Información de contacto

Email:
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Sitio web:
http://www.liferaftgroup.org
Número de identificación del gobierno:
82-0547746
Teléfono:
973-837-9092
Dirección:
155 Rt 46 West (Wayne Plaza II) Suite 202, Wayne, NJ, 07470, US

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