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The Life Raft Group

Organización sin fines de lucro

Última modificación: 01/10/2012 14:53:17

Descripción

The mission of the Life Raft Group is to ensure the survival of GIST patients through a comprehensive approach connecting individual patients' needs, the worldwide community of GIST advocates and the global health and research environment.

To do this, we focus on three key areas: research, patient support & education, and advocacy.

In the area of research, we fund and manage uniquely coordinated research initiatives that always keep the needs of the GIST patient foremost. The Life Raft Group is the only GIST advocacy organization with a dedicated research initiative led by a team of world renowned scientists and clinicians in GIST. Our collaborative initiatives are constantly analyzed to ensure their focus remains on finding a cure for GIST.

The LRG also provides support & education to patients & caregivers living with GIST on an individual basis by providing one-on-one counseling sessions, local in-person meetings, and a biennial meeting that gathers the patient, pharmaceutical & medical professional communities together in a supportive and educational setting. We also offer education to the GIST community at large through our videos & webinars, websites, worldwide GIST specialist database, a one-of-a-kind GIST-specific clinical trials database, newsletters & other materials.

In addition, The LRG is a very active presence in effecting change in the GIST community. Our advocacy role ranges from helping patients with treatment access issues on a one-on-one basis, creating regional groups in underserved areas in order to better inform & empower patients, championing patients' needs before government & policy makers and reporting on trends in dosage and survival to the world.

Avisos de The Life Raft Group

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  • FULL CHARGE BOOKKEEPER (PART TIME) - Oportunidad de empleo

    Última actualización:
    15/05/2013
    Ubicación:
    Wayne, NJ, US
    Descripción:
    FULL CHARGE BOOKKEPER – PART TIME We are looking for a dynamic, self-motivated full charge bookkeeper. Duties will include processing account payable/accounts...

  • Patient Registry & Membership Assistant (Volunteer) - Oportunidad de voluntariado

    Última actualización:
    27/02/2013
    Ubicación:
    Wayne, NJ, US
    Descripción:
    Worksite: Life Raft Group Office, Wayne, NJ Hours: 4-10 hours a week (flexible within office hours) Length of Commitment: Open Ended Volunteers needed: 1-2 ...

Historial de The Life Raft Group

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Organizaciones de The Life Raft Group

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Gente de The Life Raft Group

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  • Manya Gorman-Knutson image

    Manya Gorman-Knutson

    Ubicación:
    Seattle, WA, US
    Detalles:
    Seguidor
  • Lynn B image

    Lynn B

    Ubicación:
    West Caldwell, NJ, US
    Detalles:
    Seguidor
  • Diana Nieves image

    Diana Nieves

    Ubicación:
    Wayne, NJ, US
  • Tricia McAleer image

    Tricia McAleer

    Ubicación:
    Montclair, NJ, US
    Detalles:
    Seguidor
  • Recruiter image

    Recruiter

    Ubicación:
    Wayne, NJ, US
    Detalles:
    Seguidor
  • Sara Rothschild image

    Sara Rothschild

    Ubicación:
    Wayne, NJ, US
    Detalles:
    Seguidor
  • Pam image

    Pam

    Ubicación:
    Wayne, NJ, US
    Detalles:
    Seguidor

Información de contacto

Email:
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Sitio web:
http://www.liferaftgroup.org
Número de identificación del gobierno:
82-0547746
Teléfono:
973-837-9092
Dirección:
155 Rt 46 West (Wayne Plaza II) Suite 202, Wayne, New Jersey, 07470, Estados Unidos

Palabras clave

Health and medicine

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